Introduction to Kody

Who is Kody? Kody is our son.  He was born at 2:17am on May 5th, 1996 in Dearborn Michigan.  From the very beginning he was always in a hurry to do what he had to do.  He was born 5 weeks and 5 days premature at a whole 5lbs & 11 oz & 19 inches long. 

He is now 13 years old and a true definition of a joker.  Definitely tends to be all into his PS3 & its awesomeness. 

Most people who first meet Kody don't see this amazing little man with so much personality & strength.  Instead they see his disability.  He is 7 years into his diagnosis of Friedreich's Ataxia as of this coming July.  This blog will focus completely on him.  Figuring why not put our son's face out there and get him known .... while also educating whomever who will read about the FA that has came into our lives. 

Amazingly enough no matter what this disorder has thrown at him he has remained very upbeat and pretty amazing.  Due to a secondary condition caused by the FA he is now on his second year of homebound.  Carrying a full 8th grade course load with some modifications to adapt to the loss of fine motor skills and fatigue factors.  This card marking he made the honor roll.  CONGRATS TO HIM.