Kody has an appointment the 26th to see the MDA clinic and to see the wheelchair specialist.  This means that he will be getting fitted for new wheelchairs.  He will need a manual for some things and an electric for others.  At this appointment I will have to get the letter to enroll him in school.  The verification is to get his home bound services.  Once that is obtain then I have to enroll him in the high school then get transferred to the home bound program.  Which means that the high school will probably be fed up with paperwork by the time they are through with Kody's case but it will get handled.  He would love nothing more than to return to the 'normal' school setting and I would love nothing more than allowing him to but health doesn't warrant that.  Not to mention he would be overwhelmed if put back into the setting.  Just simply being at the pool surrounded by his able body peers would be hard and he would insist on leaving.  

The Lasix every other day has seemed to keep down the edema which has been good.  In a couple of months I will be calling the Cardiology office to set up for another appointment.  He isn't due to see that doctor again until November.  He had been seeing the cardiologist every 2-3 months but both the doctor and I felt comfortable with honoring Kody's wishes to be seen only once every 6 months.  Insurance only allows for an echocardiogram once every 6 months so the other appointments were only basic assessment and an EKG.

Once he has the new electric chair he may want to get out of the house more often.  Though he has became sensitive to the bright light outside so may also invest in some new sunglasses.