Thursday, September 30, 2010

It's been a week since the meeting with the school and we haven't got any ideas when things start up for Kody.  Tomorrow going to pick up the phone and get some answers ... especially considering the first 9 weeks of school are about to be finished.  He seems to be doing alright medically.  Maybe more unsteady and his speech is slurring more at times which frustrates him.  I mean who likes having to repeat themselves?  Not me so I know he don't like to.  We are working towards keeping him on a bed schedule because it helps him function better during the day.  Though if he was to be asked he believes the bedtime schedule is stupid.  But then again what teenager doesn't.  He sees the cardiologist the 28th of this month.  This will be giving a full picture of where his heart status is now as opposed to 6 months ago when he had the last echo.  He hasn't been needing the Lasix as often so we are playing it by ear for now.  

Tomorrow is the first day of October which means there are only 2 months until Christmas.  Ouch lol.

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