We had a visit with the cardiologist at St Josephs this morning at 9:30am. The routine test were done on him. He is all of 72.6 lbs and about 4ft8in. The doctor didn't say much about the EKG. The echo that was done today shows he has had some changes but nothing hugely significant. The thickening in the muscle has increased but the mitral valve isn't regurgitating anymore that it already was. Of course he advised we use the Lasix only when necessary because it could cause a lack of fluid in the system making it more taxing on the heart then things already are. He talked about doing a halter monitor on him during the next visit in 6 months. Also said that we may want to discuss medications again on the next visit. But he understands my reasoning for steering away from medication that could do more harm then good since the heart of a FRDA person is different.
We will deal with things as they come.
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