Tomorrow at 11am we are going to be at the hospital with Kody for a Cardiology visit with Doc McKenna. It has been six months since his last visit and so we are going for an EKG and a echocardiogram to find out how his heart is weathering the Friedreich's Ataxia wrath. This particular appointment is what usually has me on edge. Your heart is your heart and it is required to function properly. I have noticed his breathing when he is talking has changed. He is not able to say quite as much before having to recharge his breath.
Kody started school this week. How does he feel about it? I think he has mixed feelings on it because though he does not mind his reading, he is not very big on science classes. I wish he was well enough to be back in school. He has such a bright and cheery demeanor that would do so well in a social environment, like school.
He does well in the home setting though. He has a family who loves and supports him. ((HUGS))
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