Later on today I have to call and make two appointments for our teenager.  Yes I was tempted to put little man but he is not so little anymore.  The first appointment is for the Pulmonary Doctor which I am hoping can be at the main hospital we go to for everything for him.  It has been a little bit so calling will give me a better idea.  The second appointment is to see the Cardiologist.  Dr. McKenna said he would like to have him evaluated by the Pulmonary Doctor ... Dr Schnaef (?sp).  Oh I guess I should put that McKenna is his cardiologist and not just assume everyone knows who he is, right?  Sorry, had a mom moment.  It is becoming more noticeable the change in his muscle control in the neck region.  Yesterday my DH asked me why KC was bobbing his head while he was eating which is simply because he does not have the same head control he had a year ago.  I have to say I did notice the difference a few weeks ago but thought I was the only one who had noticed.  It is hard to see more of the progression and not really be able to fix things.  He is such a trooper though because he does not complain much about anything.  It may be too late by the time I get home to make the appointments so instead I may call in the morning.  Besides I have to look at the calendar to see when they have off school so the appointments do not impede on his classes.  He is doing so well in them.