On Monday we took Kody for a visit with the MDA doctor to get his physical and clearance for camp. I had to make sure to bring the clearance from his cardiologist. He is excited about going to camp this year and this will be his last year since he is 17 now and the age max 17. The doctor was quite impressed with the strength level he has in his extremities. It just confirms what we do for him is working in some respects. He is not babied but rather left to do as much as he can. He tires easily but does manage to do some of the essentials by himself. He can bathe and transfer to the toilet on his own but sometimes needs help if he missteps. For his bath we run his water and put his poofy and soap within his reach. I am proud of him for not complaining about what he does not have or is not able to do .. but rather does whatever he can do on his own with pride.
His halter monitor came up as the doctor expected it to. He is still medication free and that is what works for him. Life is life for him and he does not complain about much except when I interrupt his gaming time.
FRDA has altered how his life is going but has not taken away the essence of what makes him .. him.
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