Things with the move have taken time. I have to call to make an appointment to establish him with the local chapter of the MDA. It has been a busy last few months for sure. We have switched out his seat for his manual with the seat from his electric chair to give him a better level of comfort. He has been having episodes of his legs being cyanotic (blue in color) and we are going to address this with his cardiologist on the 23rd. He does not complain about much of anything and is a pretty easy to please kind of guy. Things with his schooling are going well and he loves when he gets to be exempt from assignments that he really did not want to do. You see, he does not like doing essays because he finds them boring. I think he just has not quite figured out how to BS his way through one. He is the type of kid that likes things straight to the point without all the unnecessary wording. I was able to find a good deal on some sweat pants for him from JcPenny's that fit him well and are easy to get on and off for bathroom trips. He prefers to remain as independent with his bathroom needs as possible though he does need some assistance with redressing after the fact. But he has managed to get past being embarrassed about such things with me. Though he does not ask his dad for help which I find interesting. You would think it would be easier to have dad help with that stuff but not with him.
We were able to get a controller to help him out with his PS3. This stops him from being bored all the time. Or at least that is what he says.
It is so tough to have a child with FRDA. He seems though to have great parents whom respect him and his choices. Kudos.
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