In Mere Months

Our son will be 18 years old.  He will have made it two years longer than the cardiologist in North Carolina had thought he would.  It is amazing how things are.  Yes neither of us like the Friedreich's Ataxia but we are managing.  Does it get frustrating?  Hell yes it does.  It makes me angry that our son has been handed such a burden to carry throughout his life.  I find myself imagining what he would be like if he was not affected by FA.  He's handsome so no doubt he would be in a relationship with some girl.  This is his junior year of high school and he would be deciding on a college.  Or driving us crazy saying he was going to go find himself before deciding on a college .He does his best to keep up academically though sometimes he grows frustrated.  We tried to detour him from taking chemistry because we thought it would be too tough of a subject.  It should not surprise me that he is passing the class with flying colors.  I am going to invite Rikki to be an author of the the blog .... Would be great to have us both inputting on it.