Was sitting here reading some emails from a few friends from a parent group. I didn't realize exactly how different the muscle structures for someone affected by FRDA compared to a normal genetic make-up .... whatever the hell normal is. We are given diagnosis that best fit what's going on when really the doctors are still scratching their heads about this disorder. Crazy to think this disorder is so very rare but I am connected via email & internet to hundreds of parents of kids with FRDA. Yes I said hundreds.