At 9am today we were arriving at the hospital for his cardiology visit. We didn't leave until nearly 12:30pm. Will thought because when we got there no one else was there that it wouldn't take so long. Guess they had took everyone else back before we got there. They did the EKG (electrocardiogram) and the ECHO (sonogram of the hearts anatomy) which didn't take all that long once we got back into a room. Blood pressure was fine but oxygen saturation levels were at 96% during a relaxing state. Once the doctor took a look over the echo and ekg he came to talk to us. He wants us to make an appointment with the Orthopedic doctor to get an update on the status of his scoliosis which won't be an issue. Though I did ask him to recommend a good one within the hospital because the one we seen last was an ass. Now I didn't put it that way but Dr. M knew what I meant. Chances are once he sees the Ortho they will want him to see Pulmonary. So we shall see how that goes. His heart has gone from HCM (Hypertrophic Cardiomyopathy) to HOCM (Hypertrophic Obstructive Cardiomyopathy). The pressures in his upper chambers of his heart are registering higher than they were at the last visit 6 months ago. This of course meant the doctor asked if I would be alright with him having a halter monitor. It's only for a 24 hour span and so he did indeed come home with it.
Over all this visit wasn't too bad. Yes his heart is progressing but no medications were suggested. This in part because Dr M know's how I feel about putting him on medications that will make him feel like crap.
Right now we are shopping around for a new manual wheelchair until we can obtain a vehicle that can handle his electric chair. Any suggestions on companies?
((HUGS)) to the readers who keep up with our lil man
No comments:
Post a Comment