Cardiology Vist @ St Joseph's

At 9am today we were arriving at the hospital for his cardiology visit.  We didn't leave until nearly 12:30pm.  Will thought because when we got there no one else was there that it wouldn't take so long.  Guess they had took everyone else back before we got there.  They did the EKG (electrocardiogram) and the ECHO (sonogram of the hearts anatomy) which didn't take all that long once we got back into a room.  Blood pressure was fine but oxygen saturation levels were at 96% during a relaxing state.  Once the doctor took a look over the echo and ekg he came to talk to us.  He wants us to make an appointment with the Orthopedic doctor to get an update on the status of his scoliosis which won't be an issue.  Though I did ask him to recommend a good one within the hospital because the one we seen last was an ass.  Now I didn't put it that way but Dr. M knew what I meant.  Chances are once he sees the Ortho they will want him to see Pulmonary.  So we shall see how that goes.  His heart has gone from HCM (Hypertrophic Cardiomyopathy) to HOCM (Hypertrophic Obstructive Cardiomyopathy).  The pressures in his upper chambers of his heart are registering higher than they were at the last visit 6 months ago.  This of course meant the doctor asked if I would be alright with him having a halter monitor.  It's only for a 24 hour span and so he did indeed come home with it. 


Over all this visit wasn't too bad.  Yes his heart is progressing but no medications were suggested.  This in part because Dr M know's how I feel about putting him on medications that will make him feel like crap. 

Right now we are shopping around for a new manual wheelchair until we can obtain a vehicle that can handle his electric chair.  Any suggestions on companies? 

((HUGS)) to the readers who keep up with our lil man

I called to see what is going on for Kody's schooling this morning.  Apparently HE'S NOT ENROLLED FOR HOSPITAL HOMEBOUND THIS YEAR!?!?  Now this would make sense had he been okay'd to attend onsite schooling but his health hasn't improved so he isn't able to attend.  Last year I went through this whole thing and ended up completely frustrated.  I've left a message for the handler of the program to call me back so we can clear this up.  School begins August 24th .... NEXT TUESDAY!?!  On top of that our desktop computer crashed so any online classes are out of the question.  Why?  Because it's just not happening.  Next thing will be to replace the computer but right now that's not something that can be done.  UGH!?!?!

Kody thought his PS3 broke yesterday but it's working today.  He ended up having to take some motrin earlier because his back was hurting.  It's the first time in a while he said anything about hurting.  It seems though it has taken the edge off because he said it felt better.  

Next week I have to call and get the ball rolling for his schooling.  Will update further when I have more details.

School is approaching soon which means there needs to be a few calls made to get things started for Kody.  He doesn't make much use of his legs anymore.  And he has to be reminded to be careful so he doesn't fall when transferring.  He has become a typical teenager when it comes to attitude and demeanor.  Talking back and being sarcastic has become a daily thing for him.  I have rearranged his room a few times to make it accommodating for him but I do think it will have to be changed around again because the current arrangement may not be working out like I thought it would.  He and Rikki daily either can't stand each other or are inseparable.  But as long as they are not arguing then things are okay.