Camp Is Around The Corner

It's that time of year again.  Mda camp is running June 26th thru July 1st.  He's excited about going especially since it means time away from his sisters and with his friends.  This camp thing has been great for him and given him connections that he might have not been able to find.  There are adaptions are top of the line so he has the opportunity to do things that during everyday life are not possible.  

Home schooling for the year is coming to and end and he has managed to carry good grades.  We've given him more responsibility for his lessons and such which has seemed to work out.  Though he needs to remember to save his work onto the computer so that it can be printed out later.  Yea he has lost a few assignments by just leaving the word document open and not saving anything.  

Medically he is doing as well as to be expected.  The progression is more evident and we're at the point of just going with the changes and coping the best way we know how.  He's due to see his cardiologist in July to get an update on his heart condition.  He hasn't took much time to complain about things so when he does is when I worry.  Then again I worry about things anyways.

Facebook accidentally disable his account for the third time and it ended up taking a well worded email to get them to open it back up.  Ticks me off when the site does this crap and then to say it was an accident.

Birthday Dinner

Tonight we went out to AppleBees for dinner for Kody's birthday dinner.  On the menu for him was the FirePit burger with onion rings.  He got surprised by the waiter with a sunday.  Yummy. 

School Year Is Almost Over

Last day of school is June 10th which means that Kody doesn't think he will have to deal with anymore school.  Little does he know I am planning to sign him up for a class or two for the summer. Only thing is I have to plan around his camp attendance which is June 26th - July 2nd.  He is sort of excited about that.  More so about the food variety that they will have.  He is now taking the Lasix that was prescribed by the Cardiologist every other day.  I am trying to watch and keep note of things with the edema.  (Fluid retention)  

The halter monitor results haven't came back in yet.  Though when they do I may ask for a print out of the readings.  

This morning Kody managed to scare himself.  When he first got up he couldn't breathe and started crying.  How I know this happened is because he told me later on.  He has his own sleep schedule which means most times he tends to sleep away the morning time.  He is now taking his Lasix every other day which has kept down the edema to where it's only really noticeable by me.  That is in part because I am very observant when it comes to things with him.  Monday have to put a few things in the male for his cardiologist.  We haven't gotten a call from the office about his halter monitor as of yet.  But the nurse said it could take up to 2 weeks for the results to be in the doctors hands.  Once the results are in I will post what was said.  Until then I have to wait.

Kody's birthday is this Wednesday.  He is going to be 14 years old and there is a couple of things that he wants and wants to do.  Plans are still in the ways to figure things out.  Kody has class this afternoon which should be fine.  He will awaken later on and work on the little bit of homework he has.  Hard to believe the school year is almost over for him.  He will be glad because he says school frustrates him.  Truth being he would prefer to be in class with other students and it frustrates him that he is unabled to.  He is a great student though with an amazing learning capacity.  I'm not sure people get that this disease doesn't take away from the mind but rather takes away from the body. 

The halter monitor results haven't came in but they should be soon.