New Manual Chair

A little while ago Rikki heard a knock at the door.  Fed ex was delievering Kody's new manual wheelchair a day earlier than expected.  \ First thing he said was "Wow these breaks are awesome!!" 

Why Can't I??

On Friday Kody and I sat down to talk for a little bit before his teacher/case manager came to visit.  He asked me if he could drop his biology class.  After telling him he could not I then asked him why.  He simply explained because he just is not interested in it.  He has expressed an interest in discontinuing his traditional educational path and just acquiring his GED.  What are my thoughts on that?  I am not completely sure yet. 

He has been using motrin to relieve discomfort caused by the scoliosis.  We have been working on his posture so that will lessen the discomfort.  Though he tends to want to revert back to the way he feels the most comfortable.  We are looking around for a new manual wheelchair for him.  One that provides more stability and balance while still being comfortable. 

Right now he is still in bed.  He tends to sleep in until at least noon which the cardiologist said as long as it does not interfer with schedule that we should let him.  His body just requires more time to recharge.  I guess too sometimes him sneaking and staying up later could explain things but he is pretty good about listening to bed time settings.

Halter Monitor Results

It had been a bit since we mailed back the halter monitor to St. Josephs Hospital and I hadn't heard anything back.  Most people would just take that as it was fine and no need to call.  I'm not like most people, so I called in about it.  The nurse said that things looked okay and that he only threw 4 PVC's (Premature Ventricular Contractions ) in a 24 hour period which to them isn't something completely concerning with the Hypertrophic Obstructive Cardiomyopathy.  I've included the link in case you wondered what either of those things were.  Trust me before his diagnosis I had no idea what half the things doctor's said meant.  Since the diagnosis I have schooled myself and tried to keep my medical terminology knowledge up to date.  Part of the reason for me going into the healthcare feild is because of all the medical issues that have arisen from my family tree.  Knowledge is power and I fully believe in this.

Oh and if anyone knows where to get a youth's manual wheelchair, would you leave me some information in the comment.  Insurance paid for the electric chair BUT those who have dealt with wheelchairs know that a manual is a necessity for alot of things. 

((HUGS)) Thanks for checking in on little man ......

His New Ride Has Arrived!!!

Check out Kody's new chair.  This is him displaying the lean option that is has.  Now do you know he also asked if he could sleep in this chair?  You know my answer was nope.  But this chair was cause for rearranging his entire room.  THANK YOU NISA!!!!!  It definitely didn't take as long as I thought it would.  The look on his face was PRICELESS when it came.  He now has a new gadget to drive me crazy with but as long as he is happy (and not hurting anyone) then I am happy for him.