Unfortunately because of scheduling issues the cardiology appointment has been moved to December 14th @9:30am.  While I was away in Venice the nurse from the office called to check on Kody and ask if things were alright which left me wondering why .... then it hit me 'Oh damn that was today' but the rescheduling only took all of 5 minutes to do.  He seems to be doing alright with the schooling and thankfully his dad has taken the reins with that.  You see with the work schedule I have and the other things I insist I do myself it made things easier for him to handle that.  Kody has been having some discussions with Nisa lately that she brought to my attention.  You see he tends to tell her when he doesn't feel good or has something on his mind.  I think he does that to spare me somehow which is sweet of him but not necessary.  Not that I am going to hound him about things when he is  talking to her about things.  That wouldn't be the brightest idea to do but then again you already knew that right?  (Yes I am directing that one at the readers ... HELLO btw and thanks for reading about our family and our son)

This afternoon I got the book in the mail for Kody's reading assignment and was quite disappointed.  Not at the shipper because hey they were shipping me what I asked for .. but for the level of the book because I was expecting this big novel and its only 32 pages ...... SERIOUSLY???

He has given us his Christmas list FINALLY.  On his list is a $50 PSN card, $10 Neopets card, Naughty Bear (ps3), Tekken 6 (ps3), and Resident Evil 5 (ps3).  He makes it so easy to shop for him.  Now the girls need to get us their list as well.  

Time to go ..... just thought I would take a second to update.

Officially 3rd Day Of School

Today made the 3rd day Kody has had class.  So far he is okay with it and his dad has been alot of help with things.  We have decided to have the new IEP modified to drop one of the classes and see how things go.  The class load handed to him originally was too much.  Especially considering that he has to catch up with the time missed out on while waiting for the paperwork to be completed so he could start.  He has been doing okay otherwise.  Nothing new to report other than a few aches and pains that have required some motrin.  No news on his chair as of yet.  It may be into next year before his chair is even more than a thought.  Bummer was he was hoping to be driving it for Halloween but for now it's just the manual chair.  He's not liking the bedtime schedule but knows he has to abide by it because of school.  Tomorrow he is getting up a little earlier so he can read up on something he has to do. 

School Has Started

Today is Kody's first day of schooling.  I received a call a few days ago letting me know that things would be starting up.  After considering everything we are already modifying the schedule given.  Originally it was English 9:30-10:30 (Monday and Wednesday), Reading 10:30-11:30 (Monday and Wednesday), Biology 2-3 (Tuesday and Thursday), Intensive Math 3-4 (Monday and Wednesday) and then 1:1 on Friday for Algebra 12-3:15.  Still working the kinks out but am going to drop his Biology class and see what else can be worked out.  

We haven't gotten any word on when things will begin for his new electric chair.  Between insurance rules and everything else, I'm opting to not put a whole lot of effort into worrying about it.  

Will update more when I have more obviously.

It's been a week since the meeting with the school and we haven't got any ideas when things start up for Kody.  Tomorrow going to pick up the phone and get some answers ... especially considering the first 9 weeks of school are about to be finished.  He seems to be doing alright medically.  Maybe more unsteady and his speech is slurring more at times which frustrates him.  I mean who likes having to repeat themselves?  Not me so I know he don't like to.  We are working towards keeping him on a bed schedule because it helps him function better during the day.  Though if he was to be asked he believes the bedtime schedule is stupid.  But then again what teenager doesn't.  He sees the cardiologist the 28th of this month.  This will be giving a full picture of where his heart status is now as opposed to 6 months ago when he had the last echo.  He hasn't been needing the Lasix as often so we are playing it by ear for now.  

Tomorrow is the first day of October which means there are only 2 months until Christmas.  Ouch lol.

Here we are in the middle of September (basically) and we just had the meeting for the homebound this past Thursday.  It has been decided for him to have teleclass twice a week and then some in home instruction which thankfully will be done by his teacher from last year.  This makes me happy because the teacher is a good one and meshes well with Kody & his quirks.  (Yes I just admitted our son has quirks. LOL)  Now he would prefer if we chuck the whole idea of school out the window but that's not happening.  

He has a cardiology appointment set up for 10/28 @ St Joes which will be when he gets the next echocardiogram and EKG.  Kody has complained more the last few months about aches and pains therefore requesting motrin for the issues.  Falls are something that is of major concern so we are keeping an eye on him and helping where we can.  

He and Rikki have their on and off days.  By that I mean sometimes they are the best of friends, hanging out and giggling.  Other days they can't stand each other.  Now as far as him and Nisa goes ... that's another story.  He is fine with her so long as he doesn't have to hear about her boyfriend everytime he turns around .. and as long as she knocks before coming into his room and says why she is coming in.  

 

On the 16th we will have a meeting for the IEP update for Kody.  This will start what it will take to get him started in school.  He would prefer to not deal with school but then again what teenager likes messing with school related activities?  He shooed me off this afternoon after getting him lunch which was a shocker.  He didn't want dear old mom sitting there while chatting with him.  

 

I contacted the cardiologist to make the 6 month appointment for Kody.  Originally I told them either October or November but their calendars for Nov aren't up yet and I spent 45 mins waiting for someone to pick up.  So we scheduled the appointment for 10/28/10 @ 12:15 with his all the time cardiologist.  Then it was time to call about the schooling.  The original time and date for the IEP meeting was 9/16 @ 1:30 but that would be impossible since it collides with the time Rikki is due out of school.  Now I am waiting for a call back to see if we can get 9:30-10am for that same day but if not it will be rescheduled for another day for the morning appointment.  

Kody has seemed a bit off the last couple of weeks.  He is still joking around and being a sarcastic 14 year old but he has seemed weaker.  We are trying to make sure he gets adequate sleep and such so just a matter of paying attention to things.  

I wasn't able to take him to the Jerry Lewis Telethon like I had planned to due to working that night but I heard they were able to raise alot of money to go towards alot of things.  Thanks to those who donated.  I'm trying to find a way online to scroll through the whole things to see if Kody was featured in any of the footage they played.  But that might not be possible.