This blog will update and follow Kody, who perhaps has more strength than anyone had perceived he would.
Friday, July 1, 2011
Kody's Home From Camp!!!
Kody camp home from camp this morning .... and was being said good bye to by EVERYONE. He had a smile on his face and over all you can tell he had a blast. He said he is definitely going next year. I put the link to be able to see his pictures via the MDA Facebook page. He actually has a tan right now too. He asked if we missed him which of course we did. Although he loves to stay glued to his game and so we have to pry him out of his room. I'll fill everyone in when I know more of what went on at camp. Besides girls waking his entire bunk up at 1am lol.
Wednesday, June 29, 2011
Kody Comes Home This FRIDAY!!!
I have been browsing through some pictures posted by the MDA on Facebook from camp and Kody looks to be having a blast. Though I had my heart drop for a moment when I did receive a phone call at a little after 11am from none other then the MDA Camp. She quickly put me at ease though because she was like "Hi this is Paula and THIS IS NOT AN EMERGENCY" Thank god because lord knows we have had enough on our plate without anything added on. Turns out he did give them a scare at camp today but it was remedied by the wheelchair technicians. The sensitivity was at 90% from his chair and so when he went onto the docks (yes I said it was figured out on the docks) the chair was weaving and the back was fishtailing. Now anyone who knows how the relationship between me and Kody works knows that I will ask him things such as "Why are you trying to scare the ladies?" and "Where you thinking about taking the chair for a swim?" He'll get and understand the references and find it funny. Do we have odd sense of humors? Maybe but hell it's better to be able to joke about things rather then always being so damn serious.
If for some reason you can not access the pictures comment below and I will be working on getting them on my computer hard drive to put onto the blog.
((HUGS)) to Kody's followers ..... we appreciate you
If for some reason you can not access the pictures comment below and I will be working on getting them on my computer hard drive to put onto the blog.
((HUGS)) to Kody's followers ..... we appreciate you
Saturday, June 25, 2011
CAMP IS TOMORROW
We have packed his bags, cut his hair, and now it's all waiting until he has to go in the morning. Usually I just pack his bag and don't ask him about what's going in it. Not this year. He had to approve all the clothes and everything. The plan is he will have his manual chair the first day and then (thanks to Paula) he will have his electric chair for Monday thru Friday. I will post some pictures both here and on facebook from the camp.
Tuesday, June 14, 2011
Read Set Camp Time
Camp starts June 26 - July 1st. Which means 6/25 is packing day for him. I am sure there are still a few little things we will need to be getting for him and they will get figured out. Today we got the confirmation that his electric chair will be picked up from the house 6/27 and delivered back to the house 7/1. He's excited about having it with him this year. It will give him more freedom than he has had before while at camp. Krash will be back on the scene. Though I have tried to teach him to be safe while driving ... he is 15 and I won't be there so everyone better watch out for their toes and whatever else that will be in his way.
He's next medical appointment is for the Cardiologist @ St Josephs Hospital in Tampa in July. The date and time of the appointment slips my mind at the moment but that's what calendars are for. Now to remember which calendar I wrote it in.
((hugs)) to our readers
He's next medical appointment is for the Cardiologist @ St Josephs Hospital in Tampa in July. The date and time of the appointment slips my mind at the moment but that's what calendars are for. Now to remember which calendar I wrote it in.
((hugs)) to our readers
Friday, May 20, 2011
Camp Is Around The Corner
It's that time of year again. Mda camp is running June 26th thru July 1st. He's excited about going especially since it means time away from his sisters and with his friends. This camp thing has been great for him and given him connections that he might have not been able to find. There are adaptions are top of the line so he has the opportunity to do things that during everyday life are not possible.
Home schooling for the year is coming to and end and he has managed to carry good grades. We've given him more responsibility for his lessons and such which has seemed to work out. Though he needs to remember to save his work onto the computer so that it can be printed out later. Yea he has lost a few assignments by just leaving the word document open and not saving anything.
Medically he is doing as well as to be expected. The progression is more evident and we're at the point of just going with the changes and coping the best way we know how. He's due to see his cardiologist in July to get an update on his heart condition. He hasn't took much time to complain about things so when he does is when I worry. Then again I worry about things anyways.
Facebook accidentally disable his account for the third time and it ended up taking a well worded email to get them to open it back up. Ticks me off when the site does this crap and then to say it was an accident.
Home schooling for the year is coming to and end and he has managed to carry good grades. We've given him more responsibility for his lessons and such which has seemed to work out. Though he needs to remember to save his work onto the computer so that it can be printed out later. Yea he has lost a few assignments by just leaving the word document open and not saving anything.
Medically he is doing as well as to be expected. The progression is more evident and we're at the point of just going with the changes and coping the best way we know how. He's due to see his cardiologist in July to get an update on his heart condition. He hasn't took much time to complain about things so when he does is when I worry. Then again I worry about things anyways.
Facebook accidentally disable his account for the third time and it ended up taking a well worded email to get them to open it back up. Ticks me off when the site does this crap and then to say it was an accident.
Friday, May 6, 2011
Birthday Dinner
Tonight we went out to AppleBees for dinner for Kody's birthday dinner. On the menu for him was the FirePit burger with onion rings. He got surprised by the waiter with a sunday. Yummy.
Thursday, May 5, 2011
HAPPY 15TH BIRTHDAY KODY DAVID RICHARD CHAMPAGNE!!!
On 05/05/1996 @ 02:17am this young man made his entrance into this world. He was 5 weeks and 5 days premature and what was his first act? He peed in the doctor's face and then the nurses. He was 19 inches long and 5lbs11oz. Over the years he has seemed to teach me as much as I have taught him. He came into this world on his own terms and on his own time table and we love him a bunch.
Happy 15th Birthday to our son Kody aka Lil Man. Tomorrow we will be off to AppleBees for his Firepit burger and onion rings ... yes for them to sing to him & give him a slice of cake then home for presents and cupcakes.
LOVE YOU BUNCHES KODY CHAMPAGNE
Happy 15th Birthday to our son Kody aka Lil Man. Tomorrow we will be off to AppleBees for his Firepit burger and onion rings ... yes for them to sing to him & give him a slice of cake then home for presents and cupcakes.
LOVE YOU BUNCHES KODY CHAMPAGNE
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