MDA CAMP 2010

Tomorrow Kody starts his week away at camp.  His camp dates are 6/27-7/2.  He is pretty excited about being able to go.  This year his dad will be taking him and dropping him off because I have an 8 hour externship to attend.  Bummed?  A little.  But I packed his bags and have everything together.  He will get to hang out with other teenagers and just goof off so that will be good.  And he will only be right up the street from the place I start externship with this Monday. 

As I type this blog Kody is back on his PS3 for the first time in about 3 days.  The service was out and so he was being social with the rest of the family for the time.  He has become sarcastic over the last couple of months.  Sometimes it's funny but sometimes he goes over the top.  Camp for him starts next weekend on Sunday which means I am going to have to get together this week to put together his bags and such.  Yes I know it shouldn't be put off to the last minute but it won't be.  Tomorrow I  will empty a suitcase to put his things into.  I have to remember to get together some pillowcases and sheets.  And oh I can't forget his bathing suit though I am not real sure he will even decide to put it on.  Who knows?  He is excited about it though and I am excited for him.  Also excited that he will only be about 20 minutes away from home so if there were any emergency we are not that far away.  Either tomorrow or today I will stop by Walgreens to pick up his Lasix.  That way he has the medication with him.

Today is officially the last day of school for Kody and his sisters.  He was glad to hear that.  I am thinking that I might sign him up for a summer class online so that it will give him something to focus on.  Of course he thinks this is a bad idea and that it's stupid.  Typical reaction from a teenager who loathes school.  I was talking to him yesterday and he was like "When are you ever going to be home?"  Now I countered that with "When will you ever come out of your room?"  You see I have been doing an externship and trying to complete the hours asap.  So last night after coming home and showering I spent some time just conversing with him.  He has become a real ham as of lately.  Earlier in the day yesterday he scooted out of his room to find Nisa in the Triangle yoga position.  Being the jester that he is he proceeds to grab her ankle and pull which means that she fell on him.  Thankfully no major damage because she fell on him. He wanted her to be in trouble but I had to explain that it wasn't her fault he had basically tripped her.

Emotionally our son is doing good.  He is interacting with us and his sisters.  Yesterday I spent some time explaining to him the importance of stretching out his legs and moving them around.  I kind of nicknamed him SpiderMan .... because he likes to stay curled up like a spider.  Well with that said then I have to explain that he has had some edema and if he doesn't stretch his legs out then the circulation isn't so great.  Working to do what we can for him even if its only a limited amount of things .. you know?  

Halter Monitor Results .....

I received the call from the Cardiologist clinic this morning.  Results from his halter monitor turned out alright.  The nurse also informed me that the health form for MDA Camp was turned in.  Both good news.  

He has been on the Lasix now for over a month and it seems to be keeping the edema at bay.  Thankfully he doesn't have an issue with taking the medication anymore.  The first few times it caused his feet to spasm which hurt.  He still has some swelling but nothing overly concerning.  Doctors tell me just to keep an eye out since I noticed the edema to begin with.  Getting him on a scale is damn near impossible because he doesn't do well standing at all much less with assistance.  

Monday is his last day of homebound for his eighth grade school year.  I am going to have to talk to his teacher about what comes next.  There was mention of doing virtual schooling due to the courses with high school.  I have been trying to research the ins and outs of that type of program.  I'm not sure how that is going to go.  Then there is the thought of needing to get a new desktop computer for all that since the one we currently have is on it's last legs.  I mean literally it will squeal like a pig with no real reason why.  Any ideas on that?

Time to go see if our night owl needs or wants anything. 

School Year Is Almost Over

Last day of school is June 10th which means that Kody doesn't think he will have to deal with anymore school.  Little does he know I am planning to sign him up for a class or two for the summer. Only thing is I have to plan around his camp attendance which is June 26th - July 2nd.  He is sort of excited about that.  More so about the food variety that they will have.  He is now taking the Lasix that was prescribed by the Cardiologist every other day.  I am trying to watch and keep note of things with the edema.  (Fluid retention)  

The halter monitor results haven't came back in yet.  Though when they do I may ask for a print out of the readings.  

This morning Kody managed to scare himself.  When he first got up he couldn't breathe and started crying.  How I know this happened is because he told me later on.  He has his own sleep schedule which means most times he tends to sleep away the morning time.  He is now taking his Lasix every other day which has kept down the edema to where it's only really noticeable by me.  That is in part because I am very observant when it comes to things with him.  Monday have to put a few things in the male for his cardiologist.  We haven't gotten a call from the office about his halter monitor as of yet.  But the nurse said it could take up to 2 weeks for the results to be in the doctors hands.  Once the results are in I will post what was said.  Until then I have to wait.

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Today is Kody's  14th birthday.  Going to extend things out and have the dinner he wants tonight as well as take him out to the movies & lunch on Saturday.  He is the strongest, wisest, and handsomest (is that a word?) little teenager ever.